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by Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
©1987 by Emily Perl Kingsley. All rights reserved.
Poems inspired during our |
Bonaire 2011I can’t believe it’s time again Here we are in Houston “Stiff-neck-ian” Scott has disappeared Louise, she had a flashing toy On the concourse, dancing round Professor Disarray Finally, we’re on the plane Upon awakening -there we saw There are a LOT of us this year So many new friends are here Give me a Tag! Give me a Tag! Pat and Mike are hiding Griff is hanging with Will The Steiner Clan is back Heather is distressed Chad is here from Florida Diana was delightful Later in the week 50 is a terrific number “JaVol,” cried George – everyday “What’s that up there?” I say Greg – I think you’re burning! Scott – you’re such a HERO! It’s ok – It’s ok Lynn? What’s this? You’re changing boats? I don’t know what their feud is? Jon Michelle Cousteau in a suit Louise, she is my daughter The Eppings are our new friends Oscar – this is his first trip Wreck diving at the Hooker Corky laughs and we all smile! Shannan, the Adventure Diver, Julie’s just enjoying the trip Now we’re out to dinner Wendy’s scarred with bug bites Rita needs to use it Gary is swimming effortlessly Bruce was quiet and so nice Thank you Lynn and Scott And still we’re all chit-chatting Love ya all! |
Divers with Disabilities Trip
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Divers with Disabilities Trip
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